… 1: empirical study focused on evaluating biobank governance in practice). We clustered the
studies according to the nine biobank governance areas mentioned above. Furthermore, we …

… ’ trustworthiness to stakeholders and the public in a long-term perspective. Given the ever-…
, we recommend that biobanks increase their efforts to future-proof their governance. …

… of potential risks in biobanking, taking into consideration the perspectives of different …
of an adaptive risk governance as an integral part of good governance in biobanking. In this …

… or the situation related to biobank research in Malaysia. There are … governance of the
national biobank as well as other privately owned biobanks in the nation, the public perspectives …

… basic understanding of biobanking over time and describe how biobanks became essential
… evolution of biobanking, including the introduction of cell lines and specimen biobanks. The …

… study of Australian biobanks and reveals contemporary practices and perspectives concerning
sample and data … It found most Australian biobanks currently take part in these activities. …

… the governance of biobanking, biobanking and its controversies are introduced in more detail.
… Footnote 8 The debate on protecting privacy reveals differing perspectives on the value of …

… The experiences in developing regulations for genomic biobank research … biobank research
on the continent. Thus, while in many HICs the challenge for genomic biobank governance …

… forms, trends of biobanking education offered by various biobanking related bodies and to
highlight future needs. The first step is to cover all activities and duties of biobanks: acquiring, …

… constituted the stage of reflection of current biobank governance. Viewed from that perspective,
the GDPR impacts our survey by constituting an opportunity for research institutions and …